Update

Even though it has not been too long since our last post, a lot has happened. We went to our appointment at WEAP (Wisconsin Early Autism Project) and Tom was diagnosed with PDD-NOS (Pervasive Development Disorder- Not Otherwise Specified) the doctor said that other than the speech delay it would be Asperger's but she could not dismiss the fact that he never started to speak on his own. Either way for now it doesn't matter much what you call it. She told us to continue to use the material that we are finding about Asperger's, as that will apply to him the most. We also finally got the results form the micro array back, that is the DNA test we had to determine if he has any sort of genetic disorder. The test came back positive. I was devastated by the news. I cannot explain why I took the news so hard, I guess because this could mean that more issues will arise in the future. It is also hard to think that only a couple of missing genes out of 30,000 have caused us so much heartache. The most disappointing news really was that so far they have not encountered any children with the exact same deletion so they do not know what to expect for the future. They were able to tell me that these genes operate the nervous system. More research is being done everyday with DNA and hopefully in the future we will learn more. We are having some additional tests done that may shed some more light on the DNA issue, I will update you about that when we here something. We had a meeting with the school this week. We will meet in a couple of weeks to create new goals for speech therapy for now. We will have to wait and see how things go and most likely will not get a full evaluation from the school until next school year. We will hopefully be starting occupational therapy with a private provider and also are looking into a few visits with a WEAP therapist, these are 100% self pay though so we would only go a few times in order to get some ideas on things we can work on at home. For now this will have to be enough. I have finally added our Christmas pictures so be sure to check them out. I also have been updating the Everything Autism section, so be sure to check that out (you will find the link on the side of this page), also within that section there are other places to click and I have been trying to update frequently.